Wed 01-27-10

I just returned from the Chemo ward and had some very interesting information given to me by the doctor. When he came in I told him I really didn't want to be seeing him again under these circumstances. He looked at me and said he didn't expect to see me in here so early either. We chatted for a few minutes and then he ask if I had any questions. I ask, so the Chemo really didn't work did it. He said you would not be in here so soon if it did. You see Dr. Rushing would not give me that straight answer. He said that no one can truly answer that question because we don't know how many spots there could have been on your lungs. My vote is with Dr Adami, I don't think it worked at all because I was supposed to have four full treatments last summer and they operated after the third round. The only conclusion I can come up with is, when they saw the MRI, they realized the tumor had gotten larger not smaller.

I also found some other news out today. As we sat in Dr Adami's office he had a call from Dr. Rushing. Apparently the surgeon that will be taking the tumor's off my lungs told Rushing she could do the surgery. They have said it should be after the fourth round of Chemo. Dr. Adami had called Dr. Rushing to ask if he would approve of me getting another CT scan of the lower GI, which Rushing didn't think was necessary. He said he didn't mind if Adami felt it would be a good idea. As the patient, I'm somewhat confused, I know Rushing said the Sarcoma goes to your lungs from your arm not any where else. Yet Adami feels it is safer to check everywhere to make sure it is only in the lungs. Sharon agrees with Adami, so I get to drink that chalky S+++ and have another lower GI next Monday. I will then start the second Chemo on Tuesday and then skip a week and then start the same routine again for three more rounds. I will need to see Rushing in two weeks to see how I did with the Chemo he prescribed. If everything is good then I will start the second round. I will get another CT of the chest after the second round to see if the Chemo is working and the tumor's have shrunk. If not, I'm sure they will want to operate as soon as possible after that.

I also refused two of the other medications they wanted to give me for nausea and to prop up my red and white blood cells. I told them the nausea medication made me sicker than any vomiting I have ever done and the other spiked my blood sugar so hi I had to go on insulin. He did change the one medication and said we would check my blood to see how my red and white cells reacted to the Chemo. I'm telling you, you have to know as much as they do so you live through the S+++ they give you. They read about the side effects of these medians, they have never lived through them.

That's all for now, I'll keep you informed.