Wednesday, June 2, 2010

6-02-10

Happy Birthday Sharon, she has finally caught up with me, we are both the same age for the next 3 months. As she said today, she got the best birthday gift she has ever had. We found out today that I have only one Sarcoma, left on my lungs. It is close to the surface and should be able to be gotten with a scope and a camera. When I met with Dr. Rushing today he was very matter of fact, and called me a survivor once again. He examined me and said everything look just fine. He then went and looked at the CT Scan. When he came back in, he said I have some very good news. There is only one Sarcoma on your lung, and it has shrunk in size from the last scan. He then went on to explain what that could mean. As he said, they will not know if it is entirely dead at this point, or what % of the sarcoma is dead and what part alive. He also explained, for the first time, that the sarcoma on my arm was actually different than what he had at first thought. Sarcoma's are the rarest of all cancers, but there are still many different kinds of sarcoma's. The reason they stopped giving me chemo the first time was that they could not stop the sarcoma from growing. The chemo they decided to use was not the best one for the kind of sarcoma it turned out to be. The one that I have on my lung is as rare as hen's teeth. The surgeon was actually excited to be able to remove the sarcoma so she could have it analysed and tested to see what chemo's work on it, and which ones do nothing. She told us they never get to see this kind of sarcoma. I've known I was always special, but I didn't know how rare I was. This whole thing has been an experiment I now find out. It was a new use of already tried chemo's, but they were administered differently and in higher amount than normal. They took me down as low as I could go. I found out today that there was no way I could have had any more chemo.

I still do not know what happened to the other sarcoma's that were first visible on the scan. As Dr Rushing said, I know what we can do, I still do not know what God wants to do. He explained that they have not been able to kill sarcoma's under normal circumstances. They have killed just about every kind of cancer in the lab, but not in a human. I only know this, I will never underestimate the power of prayer. I know I had a tremendous amount of people praying for me. I even had a lady at the grocery tell me she was praying for me. To my knowledge, I have never met this lady. I was checking out and she was in front of me, and as she was ready to go and I was getting things out of my basket, she touched my hand and just whispered, I praying for you sir, good luck with your cancer. The ladies at the bread store told me Tuesday that they were all praying for me.

The other prayer that has come almost true it the fact that Maura's old roommate that owns the Boston Celtics, has offered me and Maura a ticket to tomorrows game. I must now some how get on the early flight out of Fort Wayne to Dallas so I can get into San Diego early enough to catch the 6pm game in LA. Now I still need prayers for that to happen. I know it is not all that important, but it sure makes a guy feel special. I knew there was a reason I was always nice to her when she would come to visit during college with Maura. She has been a great friend to Maura and her family.

As for me, my BP was a little high today at the Dr's office 140/78 and my HR 76 This morning it was 123/65 but my HR was also 76. My BS was a little high again at 156. I feel so much better, I drove both ways, 250 miles today. I did happen to get a hours nap after I got home at pm. It's now 8:30 and I have to o pack. This might be my last blog for a while. It depends on when I can get on a computer in Carlsbad. Love to all. Tom

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