I had a very interesting thing happen yesterday. I actually had my diabetes doctor call just to see how I was doing. I'm not all that surprised, considering the type of person she is, but when she said she was thinking about me and wanted to call, that really got to me. She then mentioned that she had a bad caught last week, and was going to call me then, but just got to busy with all she had to do. I then coughed for her quite by accident and she said: you've got that caught too don't you. That's one of the reasons I called she said. I figure with the low resistance that you might very well get this. She then said she is sending a prescription to the drug store and I could pick it up in an hour.
Last week I had called her office because I had one prescription for the gout that I have had for years with another doctor who has now retired. He and I were friendly and he knew Carol Burns my diabetes doctor. I had received a call from the doctor who was taking over his practice and wanted me to come in and see her. I explained to the lady that called me that I was in the midst of chemo etc. and did not have the time to come in, could they just order the medicine for me. I got a call back explaining how dangerous it would be for them to just order a prescription for someone they had not given a full physical too. I then tried to explain my situation, I have three cancer doctors and Carol Burns and they have given me every kind of evaluation known to man. I tried to explain that I had the gout since I was in my twenties and that I had been to the University of Michigan to the top gout clinic in America and that they were the ones that had prescribed the medication and that I had been receiving that same thing since 1978 and have never had the gout since. She finally said: sir, if you want this prescription, you will have to come in a have a complete physical. I told her to kiss my back side and that I would never cross their office doors again. That's when I called Carol's office and asked if she would write the order. Debby, Carol's nurse, called back in about fifteen minutes and told me to go pick it up.
I tell this story only to show the difference between great health care providers and the rest of the medical profession. Believe it or not, I do understand why a doctor would not write a prescription for someone they didn't know or had no records on. I had been going to that same office since 1997. All they would have had to do was to call and talk to Dr Jones and he would have OK the medicine, but someone just didn't feel like doing a complete job. It was just easier to tell the patient to come in or else. Can you imagine what it's going to like when the Obama Care kicks in. YOU VILL DO IT AND YOU VILL LIKE IT, OR DIE POND SCUM!!
As for me today, I do have a bad cought, I do have some good medicine that seems to be helping. My BP 122/68, my HR was high today because I had been up running around first 98 and my BS was 109. I wanted to go work out, but I just have no energy with my lungs full of junk. I just hope I can get this under control before Thursday, my first chemo day. I'll keep you informed. Love to all. Tom
Tuesday, April 27, 2010
Monday, April 26, 2010
Monday 4-26-10
The past few days have been very interesting. Facebook has drawn together some of the people of my past that I would never have known how to reach. I now know where four of my past neighbors are that I have wondered about for years. It's funny that you never seem to forget your youth. My daughter has even ribbed me about not knowing all the ladies that I dated. The girls I understand, but I have gotten in touch with many of the guys. There all over the world. That is what is so amazing about facebook.
When I grew up we lived at 560 N. Nixon. It was a middle class neighborhood with mostly newer homes. That was homes built sometime in the 40's and 50's. In our case we had neighbors on all sides that had kids our own age. The McKinley's, the Knisley's, the Quinn's, the Kettering's, the Faurote's, that was just the people who's house was with in a block of us. You expand that two to three blocks and it went crazy. We then moved to the corner of Wendell and Pears and the same kind of thing happened. By that time I was in the 8th grade, but it is also when you started really meeting neighbors. St Charles was a new school and I was in the first graduating class. So were a great many people I have not seen or heard from for a long time.
I'm now facebook friends with four of my Wendell neighbors and three of my Nixon neighbors. I've actually gotten in touch with some others that are not on facebook but that have contacted me from friends on facebook.
It's funny, Dr. Rushing told me that many of his patients find that cancer teaches them things that they have long forgotten. It also teaches them to appreciate thing they might have in the past. If this has taught me anything, it's that you really do find who your friends are when you are sick. Many are afraid to talk to you for one reason or another. Others just don't want to be bothered with someone they can't relate to anymore. Then there are a lot that you find that only liked you for what you can do for them. I've been blessed to find many of my old friends.
As for my medical report. I've gotten a &^$^$ chest cold. That is what I was getting just before I went to the doctor. It is in my lungs and making it hard to breath. My BP 130/69, HR 80 and BS 129 this morning. I helped Sharon get the bread and took some money to the Bank. I went to Wendy's for lunch and came home and took an hours nap. I've now gotten on the computer, answered some e-mails and written my blog. I must now go take another nap. Not really, but I don't have a bunch of energy today. More tomorrow.
See Yea Tom
When I grew up we lived at 560 N. Nixon. It was a middle class neighborhood with mostly newer homes. That was homes built sometime in the 40's and 50's. In our case we had neighbors on all sides that had kids our own age. The McKinley's, the Knisley's, the Quinn's, the Kettering's, the Faurote's, that was just the people who's house was with in a block of us. You expand that two to three blocks and it went crazy. We then moved to the corner of Wendell and Pears and the same kind of thing happened. By that time I was in the 8th grade, but it is also when you started really meeting neighbors. St Charles was a new school and I was in the first graduating class. So were a great many people I have not seen or heard from for a long time.
I'm now facebook friends with four of my Wendell neighbors and three of my Nixon neighbors. I've actually gotten in touch with some others that are not on facebook but that have contacted me from friends on facebook.
It's funny, Dr. Rushing told me that many of his patients find that cancer teaches them things that they have long forgotten. It also teaches them to appreciate thing they might have in the past. If this has taught me anything, it's that you really do find who your friends are when you are sick. Many are afraid to talk to you for one reason or another. Others just don't want to be bothered with someone they can't relate to anymore. Then there are a lot that you find that only liked you for what you can do for them. I've been blessed to find many of my old friends.
As for my medical report. I've gotten a &^$^$ chest cold. That is what I was getting just before I went to the doctor. It is in my lungs and making it hard to breath. My BP 130/69, HR 80 and BS 129 this morning. I helped Sharon get the bread and took some money to the Bank. I went to Wendy's for lunch and came home and took an hours nap. I've now gotten on the computer, answered some e-mails and written my blog. I must now go take another nap. Not really, but I don't have a bunch of energy today. More tomorrow.
See Yea Tom
Sunday, April 25, 2010
Sunday 4-25-10
Well I do want to say at 6am it was a beautiful day. As a matter of fact in Church today they didn't have to turn on the lights in the church. I know that because I sit in the back chapel and that's where they control all the lights. It is so pretty when they can leave the lights off and let the leaded glass windows shine all their colors through the church. You do feel like you are in a real special place. It also keeps the people in church much longer after mass. We all have to feel the same feelings about how beautiful it is.
So after Mass I went back and fixed a little breakfast and then took off in search of some switches for the gas stoves over at the Essen House. I can't figure out why the people that sell industrial equipment don't stock any kind of replacement parts. They honest to God wanted to know if we needed a new gas grill. I was like, Yea and I'm going to buy it from the dealership that stocks replacement parts. Now do you have any?????? So when I ask where he thought I might get some he said try the big box stores, they sell everything else. I said: they don't sell Industrial Equipment, why should they have parts for them. I don't know, but I know we don't sell them.
So off to the Big Box stores and after about thirty minutes I finally found some on my own. I had to ask four or five "Industrial Engineers" before one of them knew what exactly I was hunting for. The one guy knew it would be in the KNOB department. When I went there it was for knobs for like your kitchen drawer. Then another sent me to the outdoor gas grill department. He knew for sure they were over there. I finally found them by accident on the shelves behind where the regular kitchen gas grills were sold.
But find them I did, and that makes Sharon happy when she can send me on a mission and I come back with something. They have been looking for three weeks. I now have four more days of normal times before I start the chemo again. Sammy is going to have here First Communion next Sunday and I have to get everything ready for food etc. before the chem brain and the chemo effect start to come on. I did get some beautiful beef tenderloin now I have to stay healthy enough to cook it. If not Don Sullivan is a good griller and David is always ready to lend a hand. My BS has gone high again 200 but my BP was 124/65 and my HR was 84. I went over to the gym, but was not able to do as much as yesterday. I was pretty tired after the hunt for the gas knobs. I never realized how far I used to walk in those big box stores until I had to hunt for this stuff. I usually exercise on the equipment for 30 minutes, and I was as tired when I got done looking as I am when I exercise.
It rained so hard today that it flooded the Essen House, thank God it was after the big crowd's had already eaten. Poor Sharon had already arrived home when they called her to please bring over fans and other equipment. Isn't owning your own business a kick??? Thank God for Sharon, I would have said: do the best with what you got, Sharon was out of the house with equipment in hand in five minutes. She did not get back until after 5pm.
Well it's now 6:45 and I'm about to sit down and watch some TV. I have a very hard live these days. Love to all. Tom
So after Mass I went back and fixed a little breakfast and then took off in search of some switches for the gas stoves over at the Essen House. I can't figure out why the people that sell industrial equipment don't stock any kind of replacement parts. They honest to God wanted to know if we needed a new gas grill. I was like, Yea and I'm going to buy it from the dealership that stocks replacement parts. Now do you have any?????? So when I ask where he thought I might get some he said try the big box stores, they sell everything else. I said: they don't sell Industrial Equipment, why should they have parts for them. I don't know, but I know we don't sell them.
So off to the Big Box stores and after about thirty minutes I finally found some on my own. I had to ask four or five "Industrial Engineers" before one of them knew what exactly I was hunting for. The one guy knew it would be in the KNOB department. When I went there it was for knobs for like your kitchen drawer. Then another sent me to the outdoor gas grill department. He knew for sure they were over there. I finally found them by accident on the shelves behind where the regular kitchen gas grills were sold.
But find them I did, and that makes Sharon happy when she can send me on a mission and I come back with something. They have been looking for three weeks. I now have four more days of normal times before I start the chemo again. Sammy is going to have here First Communion next Sunday and I have to get everything ready for food etc. before the chem brain and the chemo effect start to come on. I did get some beautiful beef tenderloin now I have to stay healthy enough to cook it. If not Don Sullivan is a good griller and David is always ready to lend a hand. My BS has gone high again 200 but my BP was 124/65 and my HR was 84. I went over to the gym, but was not able to do as much as yesterday. I was pretty tired after the hunt for the gas knobs. I never realized how far I used to walk in those big box stores until I had to hunt for this stuff. I usually exercise on the equipment for 30 minutes, and I was as tired when I got done looking as I am when I exercise.
It rained so hard today that it flooded the Essen House, thank God it was after the big crowd's had already eaten. Poor Sharon had already arrived home when they called her to please bring over fans and other equipment. Isn't owning your own business a kick??? Thank God for Sharon, I would have said: do the best with what you got, Sharon was out of the house with equipment in hand in five minutes. She did not get back until after 5pm.
Well it's now 6:45 and I'm about to sit down and watch some TV. I have a very hard live these days. Love to all. Tom
Saturday, April 24, 2010
Saturday 4-24-10
I wanted to wait until the end of the day because it was such a nice day for me. The weather was not all that great, but I had a great day. I actually sleep 7 hours non stop. That's the first time in months. I got up and went to my favorite breakfast restaurant, Coney Island. They have a great $5.00 special of two eggs, hash browns, toast or one pancake, and coffee or tea. I had one pancake today, because they have non-sugar diabetic syrup. the waitress has been serving me since I moved to Fort Wayne. She knows I own the Essen House and has gone to Antwerp just to see how good it is. I also found out today that she is a 11 year cancer survivor. That damn stuff is everywhere. I told her about my sister Margo and how she has helped and supported so many woman who have had breast cancer. After you have had it you realize the importance of support groups. It's the first time you have faced cancer, but it ain't the first time it's been faced.
After breakfast I headed to the gym, a place that I have not been for a while. I sat down and tried to figure out what settings I could use so I could go for thirty minutes. When I was very fit, about 40 years ago, no I mean in my 60's, I could do the 9 or 10 for as long as I like or until someone else wanted to use the machine. Today I picked 6 and went for 30 minutes. My left arm was really screaming right away. I looked at the timer after about 5 minutes and thought there was no way I'm going to last. And like most things in life, it got to the point I could not feel the pain any more. At about 15 minutes, I was ready to throw in the towel when the last night highlights of the all the basketball games came on the Sports channel. I told myself to go until the highlights were over and then stop. When that happened, I had five more minutes for the full 30 minute workout. I made it, I was proud of myself and felt OK when I got done. I then went over to the machine that takes your BP and HR and sat down. It only can register my left arm, so I have to be very careful as to how I sit in the chair. My first reading was like 107/55 and 110 HR. In a way that scared me so I then went over to one of the trainers and asked him to do it on one of the regular machines. 122/67 and 103 HR. That seemed much more like it. I've learned over the years, if it doesn't seem right have someone else do it for you. I have one at home that sometimes goes crazy, but when it does, I just go to the gym and have them take it again.
After the gym I went home for a while and then out to see Louis. Since I had not seen him for more than a week, he wanted me to bring him up to speed. As we talked, am Amish man called about his brother who also has cancer. He told us the kind of cancer, but it was as long as the full name of what I have. The last Louis heard the cancer was all over his body. The report today was that his cancer was in remission. He now has to get a bone marrow transfer, but his cancer is in remission for at least the time being. We then talked about why it happens to certain people and not others. After fifteen minutes on the subject, we decided, only God could answer that question and he doesn't think it's much of our business we decided. We all decided we would find out in heaven.
Louis and I have to talk very quickly during these chemo times. I can talk with some ability during this week just before the next session. After about next Saturday, one week from tonight, I start that damn chemo brain, I think I know what I'm saying, but I will not do well when it comes time to remember what I said and to whom. We got a lot talked out and it looks like there is a lot of work ahead of us. You can keep us in your prayers for the restaurant and assisted living also. We need 12 more as of tonight to be full. It's amazing what happens when some people see you coming close to a successful finish. Many people love what we have done in Antwerp, others still don't like they fact that we didn't graduate from Antwerp High.
I headed home to play a little Omaha High Low 8. It's my favorite because there are so many different things that can change the hands on 5th. street. I also use it as a way to keep my mind going. It's much like Texas Hold'em but you have a low had if it adds up to under 8. It's split pot game or high can take it all if there is no low hand under 8. I won a bunch today.
I then went to the kitchen where I made a rue for some Chinese food that we had in Indy yesterday. After I doctored it up, it was much better than what we had from the restaurant. They can use a Wok, but they no nothing about how to season their food. It's all raw and cooked well, just no taste at all. I then had a small piece of candy and came to write the blog. So it was a good day and thank you for reading this and careing. Love yea, Tom
After breakfast I headed to the gym, a place that I have not been for a while. I sat down and tried to figure out what settings I could use so I could go for thirty minutes. When I was very fit, about 40 years ago, no I mean in my 60's, I could do the 9 or 10 for as long as I like or until someone else wanted to use the machine. Today I picked 6 and went for 30 minutes. My left arm was really screaming right away. I looked at the timer after about 5 minutes and thought there was no way I'm going to last. And like most things in life, it got to the point I could not feel the pain any more. At about 15 minutes, I was ready to throw in the towel when the last night highlights of the all the basketball games came on the Sports channel. I told myself to go until the highlights were over and then stop. When that happened, I had five more minutes for the full 30 minute workout. I made it, I was proud of myself and felt OK when I got done. I then went over to the machine that takes your BP and HR and sat down. It only can register my left arm, so I have to be very careful as to how I sit in the chair. My first reading was like 107/55 and 110 HR. In a way that scared me so I then went over to one of the trainers and asked him to do it on one of the regular machines. 122/67 and 103 HR. That seemed much more like it. I've learned over the years, if it doesn't seem right have someone else do it for you. I have one at home that sometimes goes crazy, but when it does, I just go to the gym and have them take it again.
After the gym I went home for a while and then out to see Louis. Since I had not seen him for more than a week, he wanted me to bring him up to speed. As we talked, am Amish man called about his brother who also has cancer. He told us the kind of cancer, but it was as long as the full name of what I have. The last Louis heard the cancer was all over his body. The report today was that his cancer was in remission. He now has to get a bone marrow transfer, but his cancer is in remission for at least the time being. We then talked about why it happens to certain people and not others. After fifteen minutes on the subject, we decided, only God could answer that question and he doesn't think it's much of our business we decided. We all decided we would find out in heaven.
Louis and I have to talk very quickly during these chemo times. I can talk with some ability during this week just before the next session. After about next Saturday, one week from tonight, I start that damn chemo brain, I think I know what I'm saying, but I will not do well when it comes time to remember what I said and to whom. We got a lot talked out and it looks like there is a lot of work ahead of us. You can keep us in your prayers for the restaurant and assisted living also. We need 12 more as of tonight to be full. It's amazing what happens when some people see you coming close to a successful finish. Many people love what we have done in Antwerp, others still don't like they fact that we didn't graduate from Antwerp High.
I headed home to play a little Omaha High Low 8. It's my favorite because there are so many different things that can change the hands on 5th. street. I also use it as a way to keep my mind going. It's much like Texas Hold'em but you have a low had if it adds up to under 8. It's split pot game or high can take it all if there is no low hand under 8. I won a bunch today.
I then went to the kitchen where I made a rue for some Chinese food that we had in Indy yesterday. After I doctored it up, it was much better than what we had from the restaurant. They can use a Wok, but they no nothing about how to season their food. It's all raw and cooked well, just no taste at all. I then had a small piece of candy and came to write the blog. So it was a good day and thank you for reading this and careing. Love yea, Tom
Friday, April 23, 2010
Friday 4-23-10 A
Well here goes kids. We drove down to Indy at 7am this morning and neither one of us were in too good a mood. I have not been feeling well for the last few days and had a tough time during this last chemo session. I'm really not sure what is going to happen. Since I was not feeling well, I figured the Sarcoma's had increased, or the size has grown, and the chemo is not working like it should.
When we first see the Dr., he comes in with the same greeting: How's my survivor? He's a great guy and I love his attitude, so I respond in a very positive way and said I was OK today, but that I was not well during the chemo at all. We then went over some of the real bad times when I was in the Hospital and all, and he assured me that I was strong and very healthy for having this cancer. My blood work was doing exactly as it was to do, and that my BP was 130/70, and I had to be feeling some anxiety today. My pulse was 81 and my temp was 99. Weigh was 10lbs less than the last visit. They don't want you to loose a bunch of weight, but since I have it to loose, they done mind the loss.
After we talked for about an hour he then examined me and and said he would be gone for a while to look at the CT Scan results. When he came back it was just like no big deal, everything is just the same as the last time. You still have 5 sarcoma's in your lungs and they are the same size as last time. It was then that we started to discuss what exactly did that mean. He then explained how what he tries to do is to find the correct combination of chemo medicines that will stop the growth of any new sarcoma's, and to keep the one's that do exist, in the same form and size. As he then explained to me again, I do have sarcoma's on my lungs, and that is the worst place to have them. However since he has been able to determine the correct formulation to stop any further growth, it means that he has not cured a sarcoma, but he has stoped any further spread. It is now possible to remove the one's that are there, and we should not have any further sarcoma's for the foreseeable future. They will never say that you are cured, because like he said, we have successfully killed every kind of cancer cell in a test tube. However you body is not a test tube and we don't know how you get this cancer and how to cure it. We can do what we can do and hope they never come back. Does that always work? No, but it feels pretty damn good from where I sit. If I can come back on this blog after my surgery and tell everyone, I have no detectable cancers in my body, I will be as cured as I can get. Then it's just a matter of time as to how long that lasts. I'm telling you now, it sure feels good now. I'm back on the positive track again. I fell off this past couple weeks. Oh yea of little faith. I have to keep positive, I know that, that's why I didn't write in this for about a week or so.
I do have some interesting things to share that did happen the past week or so and will share those thoughts in the next few blogs. Thanks for all the prayers and support. It means so much to me. Tom
When we first see the Dr., he comes in with the same greeting: How's my survivor? He's a great guy and I love his attitude, so I respond in a very positive way and said I was OK today, but that I was not well during the chemo at all. We then went over some of the real bad times when I was in the Hospital and all, and he assured me that I was strong and very healthy for having this cancer. My blood work was doing exactly as it was to do, and that my BP was 130/70, and I had to be feeling some anxiety today. My pulse was 81 and my temp was 99. Weigh was 10lbs less than the last visit. They don't want you to loose a bunch of weight, but since I have it to loose, they done mind the loss.
After we talked for about an hour he then examined me and and said he would be gone for a while to look at the CT Scan results. When he came back it was just like no big deal, everything is just the same as the last time. You still have 5 sarcoma's in your lungs and they are the same size as last time. It was then that we started to discuss what exactly did that mean. He then explained how what he tries to do is to find the correct combination of chemo medicines that will stop the growth of any new sarcoma's, and to keep the one's that do exist, in the same form and size. As he then explained to me again, I do have sarcoma's on my lungs, and that is the worst place to have them. However since he has been able to determine the correct formulation to stop any further growth, it means that he has not cured a sarcoma, but he has stoped any further spread. It is now possible to remove the one's that are there, and we should not have any further sarcoma's for the foreseeable future. They will never say that you are cured, because like he said, we have successfully killed every kind of cancer cell in a test tube. However you body is not a test tube and we don't know how you get this cancer and how to cure it. We can do what we can do and hope they never come back. Does that always work? No, but it feels pretty damn good from where I sit. If I can come back on this blog after my surgery and tell everyone, I have no detectable cancers in my body, I will be as cured as I can get. Then it's just a matter of time as to how long that lasts. I'm telling you now, it sure feels good now. I'm back on the positive track again. I fell off this past couple weeks. Oh yea of little faith. I have to keep positive, I know that, that's why I didn't write in this for about a week or so.
I do have some interesting things to share that did happen the past week or so and will share those thoughts in the next few blogs. Thanks for all the prayers and support. It means so much to me. Tom
Friday 4-23-10
On our way to Indy for results of the CT Scan. Will let you know later. Love Tom and Sharon
Wednesday, April 21, 2010
Wed. 4-21-10
Today's blog is about my oldest daughter and her daughter Caila. Maura graduated with honors from University of Michigan. On her own she left everyone she knew and everything she had ever done and went to LA. Why? because she wanted to do what she wanted to do. Be creative, artistic, let people know who she is and what she wanted to be. She asked me to spot her the first months rent, because as she told me, she would be working by the end of the month. She did find a job and she did pay me back by the end of the month. She had several jobs at first, but ended up at Warner Brothers. As many of you know by now, she met and produced a number of album covers for some pretty famous artists.
I can go on about her career but that is not the point of this discussion. What she also wanted for her children was a good Christian Education. She has sent her two children to Catholic schools since first grade. She has spent thousands of dollars on all kinds of special projects that she has spear headed to help the church, the school and her children. Caila has attended a Private Girls Catholic Prep School for four years. She has had problems with ADHA and a number of other problems that I can't even begin to explain. If you are interested in finding out go to Maura McCarthey's facebook and become her friend. The crux of the problem is that they suspended Caila 9 weeks before graduation. I can't even write this without going crazy. I've defended the Catholic Church for most of my adult life. I know there were times when I too was not happy with what was going on in the Church. I've had to defend it to my Catholic friends who I went to high school and grade school with. I've tried to defend it to my own family. In this case, I can no longer defend it's attitude or it's behaviour.
Maura has a very close friend who has been very fortunate in life and has pledged to help her in her battle against this wrong doing. She is not a Catholic, but a Christian, and someone who has a blind child. She has already faced what happens when someone doesn't think you are normal. No Caila is not normal, but she is a Catholic, and she is human, and she has not been treated like she is either.
For all of you that follow this blog, forget about me, I'm a hopeless case. They can't cure what's wrong with me, but we can get behind Maura and Caila before this school ruins her life for good. I don't know what one person can do, I only know what many people can do in a case like this. Support Caila and Maura, go on her Facebook page, she has a web site offthewallgraffiti.com. If you can think of something for them to do, let her know or just do what you have been doing for me, support.
As for me, I've not been feeling well that is why I have not written, I have my CT Scan tomorrow and my follow up appointment Friday. The way I feel now, I have a feeling that I will be facing surgery soon. I'll keep you all informed. Thanks again for listing and keep the faith. Tom
I can go on about her career but that is not the point of this discussion. What she also wanted for her children was a good Christian Education. She has sent her two children to Catholic schools since first grade. She has spent thousands of dollars on all kinds of special projects that she has spear headed to help the church, the school and her children. Caila has attended a Private Girls Catholic Prep School for four years. She has had problems with ADHA and a number of other problems that I can't even begin to explain. If you are interested in finding out go to Maura McCarthey's facebook and become her friend. The crux of the problem is that they suspended Caila 9 weeks before graduation. I can't even write this without going crazy. I've defended the Catholic Church for most of my adult life. I know there were times when I too was not happy with what was going on in the Church. I've had to defend it to my Catholic friends who I went to high school and grade school with. I've tried to defend it to my own family. In this case, I can no longer defend it's attitude or it's behaviour.
Maura has a very close friend who has been very fortunate in life and has pledged to help her in her battle against this wrong doing. She is not a Catholic, but a Christian, and someone who has a blind child. She has already faced what happens when someone doesn't think you are normal. No Caila is not normal, but she is a Catholic, and she is human, and she has not been treated like she is either.
For all of you that follow this blog, forget about me, I'm a hopeless case. They can't cure what's wrong with me, but we can get behind Maura and Caila before this school ruins her life for good. I don't know what one person can do, I only know what many people can do in a case like this. Support Caila and Maura, go on her Facebook page, she has a web site offthewallgraffiti.com. If you can think of something for them to do, let her know or just do what you have been doing for me, support.
As for me, I've not been feeling well that is why I have not written, I have my CT Scan tomorrow and my follow up appointment Friday. The way I feel now, I have a feeling that I will be facing surgery soon. I'll keep you all informed. Thanks again for listing and keep the faith. Tom
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